Our Services

 

SERVICES

EB Parents’ Respite Care

It’s typical that caretakers of EB children rarely can take a break away from the daily EB care routine. We seek to help provide respite to assist in recharging EB parents and caretakers’ energy and life outlook.

EB Kids Camps Scholarships

Special Camp experiences provide EB kids with unique and special life experiences led by EB-trained camp counselors. We come alongside EB caretakers to help offset the travel costs of EB families that desire to give their EB family members a world class, camp adventure.

EB Legal Aid Call Center

Medical insurance matters, Social Security Disability, and state Medicaid issues can become thorny for EB families given the significant medical complexity and clinical specialists that EB care management involves. We help EB families navigate these arenas through our call center.