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Supporting the practical and healthcare needs of families in the United States who care for or are raising children born with Epidermolysis Bullosa (“EB”)

 

About Us

Joe and Katie Murray founded the EB Legal Aid Society in 2018 through inspiration from their courageous daughter Ella. Born in 2007, Ella has endured the daily pain and suffering common with her form on EB with a combination of grace and mercy from God, the prayers and support of family and numerous friends, and her determination to live life to the fullest. She has achieved herculean heights in life against steep odds through hobbies that include competitive, adaptive air rifle shooting, fishing, hunting, outdoor life, cooking, and singing. Her experiences through Camp Spirit’s Colorado annual winter adventure camp has kindled in her a love of adaptive skiing, dogsledding, and horse riding. The EB Legal Aid Society is the Murray family’s avenue for supporting other EB families in their caretaking and raising healthy attitudes and courageous spirits for their EB children throughout the United States.

Supporting beautiful and courageous EB Families throughout the United States!

We’d love to help your EB family